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ORIGINAL ARTICLE
Year : 2017  |  Volume : 4  |  Issue : 3  |  Page : 118-125

A web based national registry for facial anomalies (DFA) in Bulgaria: An Electronic Medical Record for Facial Anomaly


1 University Hospital of Plovdiv, “St. George”, Plastic and Craniofacial Unit, Plovdiv 4000, Bulgaria
2 ALA-Georgui Izmirliev Street 63, Plovdiv 4000, Bulgaria

Correspondence Address:
Youri Constantinov Anastassov
University Hospital of Plovdiv, “St. George”, 4th Floor East, Blvd Peshtersko Chausse 66, Plovdiv 4000
Bulgaria
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/jclpca.jclpca_56_17

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Introduction: An original software platform was developed as a partnership between a Parent Organization (www.ALA-BG.org) and a Cleft Center (Medical University Hospital of Plovdiv, Bulgaria). Methods: The software platform enables both the multidisciplinary team and patients to access and update the information referring to certain treatment stages, the treatment plan and the outcome of a stage in a patient's treatment. The information includes data provided by different specialists involved in the multidisciplinary treatment who work at different geographical locations by using the Internet and the original software platform in conformity with the confidentiality and personal data protection requirements. The patient and family are in charge of their own personal data. The patient specifies which specialists can have access and what they may access. All specialists can add their notes and data (text, audio, pictures, video and PDF files) into the patients database. Results: In 2014 the funding for DFA has stopped and ALA receive the rights to develop the database DFA in an Electronic Medical Record, www.emrfa.org. EMRFA was put into operation in 2015, and in 2017 all target functionalities in the system were completed. More than 800 patients are included and the following of the patients have improved substantially. Conclusion: EMRFA can be easily translated into another language and modified for multidisciplinary treatment of other disorders; furthermore, there is a provision for connection and information exchange with other electronic medical records.


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